What to Expect

As with any major life transition, caring for an elderly parent or a chronically/terminally ill family member presents many changes and challenges. 
 
According to the Family Caregiver Alliance, here’s some of what to expect and consider.
  • For the family dynamic. You may need to adjust to your role in authority, such as assuming the role of decision maker. Expect some resistance as your parent(s) cope with the loss of complete control over their independence; ideally, you can arrive at decisions together. Discuss what you expect from your parent, from chores to financial contributions. And consider how your spouse and children might help with (or be ready for) caregiving.
  • For your lifestyles. If your loved one will be joining your household, consider issues such as bed and nap times (for all family members in the house); meals (what’s served, when it’s prepared and meal times); smoking and drinking rules; outings and transportation; continued hobbies; household noise/activity level; and your parent’s involvement in social networks. You and your parent might both have to adjust your lifestyles; the key is mutual understanding/respect.
  • For your time. Caregiving will affect your schedule in every way – work, family time, personal time, and sleep. Assess if you’ll need to adjust your work schedule and consider the financial and career implications. Think about when and how you will make time for your spouse, children, friends and interests, and make sure you get the rest you need. Investigate what provisions, if any, your provincial, territorial or state government has in place to support family caregivers related to time away from work. 
  • For your home. Depending on your home and the specific care needs, you may need to make certain modifications to ensure things like privacy (for your parent and other family members); mobility and safety (wheelchair accessibility, grab bars in the bathroom, raised toilet seats, special locks, etc.); and comfortable temperatures.
  • For the finances. Who will pay for what? How will bills be paid? Will other family members contribute? How will you keep them informed of expenditures and other financial decisions? What happens if they disagree with how you’re handling your parent’s money? Open discussions are critical.
  • For your fulfillment. Caregiving is often hard and tiring – but think of the immeasurable rewards: the opportunities to share your household, to have grandchildren learn from their elders, and to give back the love, care and support that your parent has provided to you.
What to Expect
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